International Federation for Spina Bifida and Hydrocephalus

The International Federation for Spina Bifida and Hydrocephalus (IF) is the international organisation representing people with Spina Bifida and Hydrocephalus (SBH) and their families worldwide. The organisation founded in 1979, represents Member Associations in countries all over the world with unique and expert knowledge on SBH.

The mission of IF is to improve the quality of life of people with Spina Bifida and Hydrocephalus and their families, and to reduce the incidence of neural tube defects and Hydrocephalus by primary prevention, by raising awareness and through political advocacy, research, community building and human rights education.

Our vision of the future is a society that guarantees human rights of children and adults with SBH, and celebrates their contribution in all areas of life. A society that practices also primary prevention of neural tube defects and hydrocephalus. This demands strong political advocacy and international solidarity.

IF promotes and protects these rights in accordance with the UN Convention on the Rights of Persons with Disabilities.

How does IF advocate on behalf of the SBH community?

Ensuring human rights to individuals with SBH demands strong political advocacy and international solidarity. IF promotes and protects these rights in accordance with the UN Convention on the Rights of Persons with Disabilities through political advocacy, research, primary prevention, awareness raising campaigns, human rights education and community building.

IF holds Special Consultative Status at the Economic and Social Council of the United Nations. Through the Fundamental Rights and Citizenship programme, IF holds a privileged relationship with the European Commission. IF is represented at for example the Board of the European Disability Forum (EDF), the Board of EURORDIS and the Board of the International Disability Alliance (IDA). IF is part of the Executive Management Team of the Food Fortification Initiative (FFI).

 

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To donate, please visit: https://www.ifglobal.org/donation/ 

Contact details:

The International Federation for Spina Bifida and Hydrocephalus (IF)

Web: www.ifglobal.org

Email: info@ifglobal.org

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